Writing again

So why do I post again?

I found it amazing how few resources there are to support people dealing with head injury recovery. How little help there is from the medical community. We've seen many many specialists, ear specialists, eye specialists, neurologists, migraine and head injury specialists.

Their answer is always the same. There is nothing we can do. It will take time.
The only help is some pain management. And the drugs barely work on the bad days.

I figure that by posting, maybe there's someone who reads this whom it can help.

We were very hopeful last week, when finally he had an appointment at "GF Strong Rehabilitation Centre". Then he received another call for another appointment, with another doctor at GF Strong, less than a week after the first. No-one seemed to know what was going on.
The day of the first appointment, we drove to GF Strong, only to be told that the appointment with Dr Underwood was actually at a private clinic, which no-one had told us. We raced to the private clinic location. Tyler is asked to fill in a four page questionaire prior to the appointment. And the appointment, it turned out, was for a back injury of many years ago, which has long since healed.

Sometimes you wonder who has the dysfunction :)

Dr Underwood had the same message that the previous specialists had. There is nothing we can do. She did have a new term for us.

At first, the term was "concussion". It then became "post-concussion syndrome". The next scary term was "brain injury", as well as "post traumatic brain injury". The latest term is "persistent post concussion trauma or syndrome". What's in a name? Well, each new name and term gives us new google searches! :)